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Shannon Burkoth
- Dec 13, 2016
- 4 min
“I know I’m Different From Other Kids” - A Conversation With My Daughter. - Guest Post by Claire Cri
I met Claire and her daughter Mathilda at the Narcolepsy Network conference this past October in Orlando, FL. We sat together for breakfast one morning. Claire's daughter Mathilda is ten years old and she has Narcolepsy and Cataplexy, just like me. It is interesting to see the narcolepsy journey from both a child's and parent's perspective. You can read her blog anytime at clairecrisp.com. Claire is also a Rock Star advocate for her daughter and the narcolepsy community...Tha
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