From playing the victim to becoming a survivor, this is my journey with narcolepsy and rare disease. I choose to fight, to raise awareness, end stigmas and to hopefully help others along the way...
Melissa, you're Famous!!! This is my sleepy sister!
Hi! My name is Shannon and I am a rare disease advocacy professional. I was diagnosed with the rare disease narcolepsy with cataplexy in 2010. No, it's not at all like you see it portrayed in the movies. If you'd like to know more about narcolepsy you can visit the tab in the menu above.
My blog is about me, my life with narcolepsy, my adventures in advocacy and doing what I can to make a difference to help those also affected by rare disease and illness. I am passionate about this cause as you will hopefully see in the stories written here. I draw my hope from my faith in God.
Thank you for reading and feel free to leave a comment now and again. :)))
Wishing you all big smiles, lots of laughter, and love for life no matter how it looks!!!