Events Page

February 15, 2018               Gateway Technical College, Kenosha, WI

                                             Speaking engagement w/Nursing Students

February 25-28, 2018         Rare Disease Week on Capitol Hill

March 10, 2018                    Suddenly Sleepy Saturday

March 10-11, 2018                Sleep-In 2018, Host Pajama Party, Kenosha, WI

 

April 25-27, 2018                World Orphan Drug Congress USA, National Harbor, MD

                                             Round Table: Strengthening patient centricity in clinical trials

October 4-6, 2018              Global Genes Patient Advocacy Summit, Orange County, CA

October 5-7, 2018              Narcolepsy Network Patient Conference, Indianapolis, IN

                                            Facilitating Newly Diagnosed Support Group

                                            Panel discussion on Parenting with Narcolepsy

October 23-24, 2018         Early and Managed Access Programmes IQPC Conference, London,                                               UK, Speaking and Panel discussion on EMAP's, patient opinion                                                         leaders

November, 2018                Cystinosis Research Network Family Meet Up in Charleston, SC

                                            Help Facilitate 1 day family conference

February, 2019                   Rare Disease Week on Capitol Hill

June, 2019                          NORD Family Forum in Houston, TX

 

July, 2019                           Harmony Biosciences, Grant Review Committee

September, 2019               Global Genes Rare Patient Advocacy Summit

                                            Social Media Advocate

October, 2019                    Harmony Biosciences Company Celebration of Wakix Approval

                                            Keynote Speaker

November, 2019                Neural Trials Research Narcolepsy Conference: Understanding                                                       Narcolepsy in 2019 and Beyond, Keynote Speaker

                                                   

 

      

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