Events Page
February 15, 2018 Gateway Technical College, Kenosha, WI
Speaking engagement w/Nursing Students
February 25-28, 2018 Rare Disease Week on Capitol Hill
March 10, 2018 Suddenly Sleepy Saturday
March 10-11, 2018 Sleep-In 2018, Host Pajama Party, Kenosha, WI
April 25-27, 2018 World Orphan Drug Congress USA, National Harbor, MD
Round Table: Strengthening patient centricity in clinical trials
October 4-6, 2018 Global Genes Patient Advocacy Summit, Orange County, CA
October 5-7, 2018 Narcolepsy Network Patient Conference, Indianapolis, IN
Facilitating Newly Diagnosed Support Group
Panel discussion on Parenting with Narcolepsy
October 23-24, 2018 Early and Managed Access Programmes IQPC Conference, London, UK, Speaking and Panel discussion on EMAP's, patient opinion leaders
November, 2018 Cystinosis Research Network Family Meet Up in Charleston, SC
Help Facilitate 1 day family conference
February, 2019 Rare Disease Week on Capitol Hill
June, 2019 NORD Family Forum in Houston, TX
July, 2019 Harmony Biosciences, Grant Review Committee
September, 2019 Global Genes Rare Patient Advocacy Summit
Social Media Advocate
October, 2019 Harmony Biosciences Company Celebration of Wakix Approval
Keynote Speaker
November, 2019 Neural Trials Research Narcolepsy Conference: Understanding Narcolepsy in 2019 and Beyond, Keynote Speaker