Adventures in advocacy...

Rising Voices of Narcolepsy Filming Weekend  Sept. 2018 

San Jose, CA

Narcolepsy Network Conference

Oct. 2018

Indianapolis, IN

World Orphan Drug Congress USA 2018

National Harbor, MD

Rare Disease Week 2018

Washington DC

Sleep-In 2018,

Pajama Party at my place!

Global Genes Rare Patient Advocacy Summit, 2017

Irvine, CA

Narcolepsy Network Patient Conference, 2017

Portland, OR

© 2023 by DO IT YOURSELF. Proudly created with